Thursday, December 30, 2021

Death...Don't you wonder....

...what is the process of dying

Of course this subject has been on my mind for quite some time now.  I have read a few informational publications distributed by hospice organizations, etc. and physicians.  And I have been at the bedside of someone dying.  However, you never really ask or question a person on how they feel, what they are thinking, etc.

I kind of feel like we (in general) are told that you are dying, you start feeling tired, eventually ending up in bed and as time goes on you get weaker, you stop eating, you are on pain medication that puts you kind of in a sleep coma and eventually die.

What I am experiencing is the tiredness, taking medications for pain, wanting to sleep a lot, not getting dressed in the morning, just staying in PJs and than the next day I am up, showered, dressed and wanting to clean up, etc.  Of course the tiredness comes afterward and I am ready for bed.  Each day is the same only different.  I am kind of feeling guilty that I feel better than I should.  I know, that sounds weird.

There are days that I really feel that this is it.  I feel so bad that I am ready and feel like my body is ready.  You have to think too that perhaps the body is ready but the mind is not.  You would think that there would be no good days 

As I continue on this journey I want to add along the way the thoughts, actions, etc. so that others will know what it is like.

I know, strange entry.....

UPDATE:   So still doing the ups and downs.  I get really tired and it's hard to breathe at times when I sweep or move something, especially going up and down the stairs, etc.  Taking down and putting away the Christmas decorations was hard but completed.  As I sit and rest I am seeing all the things that I should do but know that I won't get done.

The upping of dosage and time frames of morphine has helped tremendously.  I am still tired and have very little energy.  I have found that coloring (pencil/market/etc.) books are soooo soothing.  Still have my puzzles but the coloring is a nice change.  I have completed two books already.  









Tuesday, December 28, 2021

Coloring

 








Coloring is supposed to be soothing, relaxing.  However in the past I have found it can sometimes be a little overwhelming.  What to color, what colors, where to color, etc. etc.

Yesterday was not a good day and I spent most of the day in bed.  The kids are on winter break so Joci was home with me.  Joe and Jennifer were working.  

Joci and I decided to color.  We were coloring giants.  And we were really good.  We actually spent the whole day in/on my bed coloring .  Jennifer was working from home so on a couple of her breaks she colored with us. 

Between the medicines and coloring the day went by really fast.  Going to have to get some more books:)




Wednesday, December 22, 2021

Hospice

 I am officially signed on to Journey Hospice here in Illinois.  I was a little apprehensive about Hospice in general but know that it is something that I am going to need to utilize here in the near future.

So far I have been very pleased with the group.  Yesterday was not a good day for me.  They were here very quickly to help.  Jennifer was working from home (Tuesdays and Fridays) which was good and between them and JJ I got thru the day.  I know that I will have more of those types of days and am comforted knowing that I have the care I need a call away.